Sarmiento explains that to rule out that Iñaki had an intellectual disability it was necessary to perform a test the results had to be analyzed in the United States and then deliver a diagnosis until a month later, more than Rafa describes as ‘hell’. Fortunately, the test was negative.
“Describing this month is complicated. Even at this moment and looking at it in retrospect it’s hard for me to think about it and remember it. It was just Christmas and winter holidays that we take as a family. In the middle of a flight, I went giving an uncontrollable panic attack that Jimena was able to contain and control.
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To me it was unbearable and simply impossible to maintain sanity. I was terrified of what could happen, mean or define in our lives and directions. He saw the child increasingly lost in himself and in absolute disconnection from the environment. It hurt me, it caused me anxiety, anger and an endless amount of doubts, guilt, questions and torments, ”he recounts.
Rafa also shares that it is not yet possible to determine with certainty in which neurological spectrum his child’s suffering is and details that it will be necessary to wait until he is older to know a clearer diagnosis.
“Giving a diagnosis Iñaki has been difficult and even today it is. He presented from the beginning a series of very characteristic features of the autism spectrum and so many other typical things that could contradict it. to expect him to turn seven to have a clearer picture. “
However, Rafa rescues the virtues he finds in Iñaki, whom he refers to as ‘The Great Master’, as in his words, he reminds him and his whole family of innocence and a unique way to enjoy the life.
“My sister says Iñaki” The Grand Master “· The nickname comes from when we realized, even with complacent envy, the way he enjoys life and its little details. From a sound or a taste. A feeling, a song, the arrival of someone, Iñaki reminds us daily that there are many enjoyable and beautiful things in life, he has taught us to taste what seems insignificant and to me personally, he has not only made me a best father, but also a better person.
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Seeing all that we have gone through, it seems an immense irony what a person who has not yet been able to say his own name well, but who in love and nobility, does not have the slightest problem of diction and pronunciation, has taught me.
In the text, Sarmiento regrets that the conditions in Mexico did not allow them to guarantee a good development for their son, so they made the decision, as a family, to move their life to Spain in search of a better quality. of life by Iñaki. This goal, in his words, is being achieved by seeing the learning he has developed in his new educational model.
Rafa Sarmiento also spoke about the severe depression he experienced as a result; the need he had to attend therapy and is grateful for the great team he has formed with his wife to be able to move forward as a family.